Infusion 1- Remicade

The first challenge was that it is an hour and a half away.  The place wasn’t the kind to build confidence. The waiting room was a huge room that used to be used for physical therapy, with piles of smashed up file boxes stacked all around the room, and other supplies, and 5 old uncomfortable chairs against one wall.

The actually infusion room was clean and tidy, but there was no wi fi and about 20 chairs in a row with two tv sets.  The chair was way to big and I felt like goldilocks in papa bear’s chair but once the foot rest was lifted it was comfortable enough.  They weren’t prepared for anyone with a latex allergy and I had to wait while they found gloves and tape they could use on me.  My nurse explained the procedure and went over the most likely side effects that I might have immediately, including itching, headaches and fatigue.  She also explained that they can not do remicade if I have any signs of illness, have recently taken antibiotics or been around anyone ill, because it will compromise my immune system.   They also gave me a TB test that I will need to get checked on Thursday, and took blood for more labs.  The IV went into my lower arm right below the inside of my elbow.  I couldn’t feel the meds going in except for the coldness of it.  About two and a half hours into it I started to itch all over and they wound up giving me two different anti allergy meds into my iv.  I felt fine just very achy and tired, but to be honest I have felt very achy and tired for days now.  I slept for the last hour of the infusion and woke up groggy and fell back asleep as soon as I got into the car.  After I got home I still feel a big groggy, and I bet I could sleep another several hours with no problem.  I also feel uncharacteristically cranky, but I am assuming its just a desire to go back to sleep, but being unable to because I am waiting for a fax from the doctor to show up at Kinkos.  It was my son’s first day of 8th grade, and I wasn’t able to see him off but I was glad I was at home and awake when he got home to hear about his first day.  I go back for my second infusion in two weeks.  In the meantime its rest, rest, rest, and saving spoons for the things I really must do, and staying away from hospitals and sick people and doing my best to replicate a germiphobe which isn’t in my nature.

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Filed under Health, Infusions, PsA, Remicade

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