Daily Health Journal- Day 22

I am starting to feel my blog is whine whine whine, with very little solution.  I think my whole world may be whine whine whine, until this migraine just goes away, and I don’t mean for a couple of hours, I want days without migraine.

Yesterday I took maxalt and over the counter meds early, I knew I had to get through a loud day at the school.  I went into the school a little later than some of my team mates, but I brought them lunch to thank them for allowing my the flexibility.  My migraine was moderate.  I sat inside the middle school dance away from the brightness of the full sun day.  The loud noises and flashing lights did me no good.  Before the dance was over I was vomiting at pretty close to code red migraine.

After I got home the ice pick headaches started up again.  There isn’t much information about ice pick headaches but they are intense pain that only last a few seconds.  I am used to pain.  This is probably the most intense pain I have known, but it doesn’t last very long.  The problem is I seem to completely check out during those few seconds.  I become nothing but pain.  This would be really bad if it happened while driving, so I will be staying off the roads today, until I know they have gone away.  I am not sure how many I had yesterday, but it must have been around a dozen.  They increased as the night went on.  I have had them in the past, but they are very rare, and I don’t think I have more than three in one day, or 5 within 6 months.  There is some evidence that they are related to migraines and that there is a relationship between them and uncontrolled migraines.  When I think about my migraine being about three weeks long by now that would make sense to me.

The good thing about the ice pick headaches is they only last a few seconds and the bark is worst than the bite, meaning they seem to not be a sign of anything dangerous at all.

Today I am going to go into urgent care and see if I can get an injection to hopefully get rid of this migraine.  I am at the point where I need to consider that the migraines are not part of the arthritis but possibly the Remicade may be making them worse.



Filed under Chronic Pain, Daily Journal, Ice pick headaches, Migraines, Pain, Remicade

2 responses to “Daily Health Journal- Day 22

  1. Laurie

    “I am at the point where I need to consider that the migraines are not part of the arthritis but possibly the Remicade may be making them worse.” Aren’t migraines a known side effect of this medication? I seem to recall that my Dr told me that migraines and lymphoma were both side effects, the reason I declined treatment with this med. I am hoping that some day someone will discover a miracle to help with psoriasis. Until then, I guess we deal.

    • Absolutely migraines are a side effect of the medication, but when I have at least half a dozen migraines a month when I am feeling great, I don’t avoid a medication because it could possibly cause migraines. My doctor didn’t give lymphomia as a side effect. He did mention that heart attack was a possible side effect but that it is also a “side effect” of psoriatic arthritis, so the medication may just not be preventing the heart attacks from the arthritis. I do know that all of the medication choices for this illness seem to give “death, and certain types of cancer” as a side effect. Its hard to choose between the symptoms/side effects of the illness and that of the medication sometimes. Quality of life is important to me, so is use of my body, so is longevity. I also have to weigh the likelihood of the side effects and symptoms. For instance its very likely that my immune system will be compromised by the medications, its likely I will easily become sick and have a harder time fighting the illnesses. I can take certain precautions to avoid infections, such as avoiding ill people, hospitals and unsanitary situations. It is less likely I will have a heart attack, but I can also adjust my eating habits and life style so that my heart is healthier. Somethings I can’t adust for, some I can. It is possible the medication can kill me, but its not likely to. With the agressiveness of this illness, and having already tried alternative treatments, my doctors and I have decided that not taking medications is not an option. That being said, I may, and do, add alternative treatments to my western medicine medication treatments. I have to carefully balance the risks with the benefits, and even then, will never be sure I am making the right decision. I just know I want to live the fullest life possible, for as long as I can.

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