Well I won’t be able to call this a daily health journal if I don’t start writing in it more. Just by the time I get done with running my errands and taking care of my responsibilities I go to lay down and once I lay down for the evening I don’t move again until morning.
It’s 3 am and I am up with acid reflux. I don’t know how someone with acid reflux as bad is mine forgets they can’t eat pizza, but I ate it. I suppose its better than being up with a migraine or other pain.
Monday I had Steve Ito work on my shoulder again and it hasn’t bothered me since. He also worked on my migraines again and my morning migraine wasn’t there when I woke on Tuesday.
I also saw Dr. Le about the Remicade and Psoriatic Arthritis on Monday. I was hesitant to have the Remicade every 6 weeks instead of 8 but the pain does come rushing back after just a couple of weeks and I want to get the most benefit I can from the Remicade so I am following his advice and getting the infusions every 6 weeks instead of 8. Its a hassle since I can’t drive myself and its so far away. It means someone’s whole day is taken just driving me there and back and waiting for me while I have the infusion. Dr. Le told me about a law called the Family Leave Act, where an employer must give a family member time off to get necessary care. My husband does get family medical leave but its really good to know about this law and I am sure it can help others if I don’t need it. Basically a doctor would just need to fill out forms that any HR department would have. Still I know I am out of service for a couple of days after the Remicade, and that I am asking someone else to take a whole day for me, made me hesitant about agreeing to the more frequent infusion. But it really does seem to be working, and I so much want to live a normal pain free life.
I have read that the Remicade is a chemotherapy, and I know its not as brutal as cancer chemo, but it was still a little shock to see it in writing on some paperwork the office gave me. I guess if it works they can call it whatever they like.
Some wonderful news is a friend is going to be sharing a little art studio/gallery space with me. It’s going to be something that will work around my illness, we will but a heater in, and a sofa with lots of little throw blankets so I can be comfortable when there. It will also have tons of flexibility so I won’t need to go in at all on bad days.