Monthly Archives: June 2014

Infusion recovery

Some people leave their infusion and go to work. I sleep for about 25 hours then I am a little tired for an additional day. This time I feel exhausted days later. My pain has also been consistently orange and now feeling red. Not sure if it’s infusion related or if it’s because I need to decrease the time within infusions. I am hoping to be feeling better in a day or two.

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Code red

About 5 days before my infusion the pain hits hard. The last 48 hours every movement has been painful and the pain of course is causing exhaustion. On top of the pain in my muscles and joints the chest and jaw pain is at 11 on a scale of 1-10. I feel like just screaming but what good would that do. I am just going to keep my commitments low until the infusion so I don’t put myself in a position to disappoint anyone else. Infusion is Friday. Give me patience and tolerance to make it through.

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