Code red

About 5 days before my infusion the pain hits hard. The last 48 hours every movement has been painful and the pain of course is causing exhaustion. On top of the pain in my muscles and joints the chest and jaw pain is at 11 on a scale of 1-10. I feel like just screaming but what good would that do. I am just going to keep my commitments low until the infusion so I don’t put myself in a position to disappoint anyone else. Infusion is Friday. Give me patience and tolerance to make it through.


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