I know better to diagnosis anything based on the internet but its still a wealth of knowledge that can help direct someone with an illness on what to bring up to their doctors. I have had a chronic cough most my life. It started as just a “nervous” cough when I was in my early teens. In my early 30s it became severe and actually functioned my ability to live as I once had. It was diagnosed as severe asthma, which wasn’t a surprise since I had sports induced asthma most my life. They treated it for about 10 years as asthma, preventative drugs, inhalers, nebulizers, all to zero affect. My sensitivity to chemicals got so bad it was often hard to leave the house. Finally I got a new doctor who put me on a doze of meds for acid reflux. Within days I felt better. So now when my cough gets bad that is where I go again. Its typical I take three to four kinds of meds for acid reflux when it gets really bad, sometimes it helps a bit, sometimes I still get worse. Early morning, not being able to sleep because of my cough, it hit me that the cough got much more intense about the same time my body in general started to hurt mysteriously. So I googled it. Lungs and PsA. And there it was. Lungs, Aorta (which I already have), eyes, all organs can be affected by PsA. Then I thought about what I was doing differently that might cause a flare up. And it hit me I haven’t been dancing. And when I don’t go dancing I no longer take several anti inflammatory a day. So I started the day with an Aleve and we will see how it goes, and also bring it up with the PsA doctor next time I see him. Like the heart it probably won’t mean a change in the way its treated but I could possibly sto eating a whole container of tums in a day.
Tag Archives: acid reflux
If you know me you know I avoid as best I can prescription pain killers. It’s bad enough that I have my infusion and the Meds to counteract my reaction to it, I don’t need to put more ick into my body. I also just don’t like the way they feel. I lose ambition, feel loopy and slow and I am completely uninspired to do anything. I do however take more Aleve and Excedrine than anyone ought to.
I am having a bad flare up though. My chest pain has been so bad that it’s keep me from dancing and classes. and last night it kept me awake most the night. I found myself looking forward to my husbands 4 am alarm so I could turn on the tv for distraction. As is often the case secondary illnesses are also flaring up. Migraines, acid reflux, and allergies.
Days like this I long for those pain killers I so judiciously avoid. Or an IV of something that will just knock me out. But I know that they aren’t good for me in the long run and I need to look at the big picture. I am sure I will be dancing again soon enough, but for now forgive my laziness.
After meeting with my doctor last week I learned that there is one other injection that I can take but it isn’t as strong or have the success rate that Remicade has. However the doctor mentioned that some medications work better than others for certain people and you don’t know for certain until you try it. I mentioned I don’t like the idea of taking steroids on a regular basis. He increased the anti histamine drugs in my premed and suggested I take a otc allergy med daily for a week and then as needed. I went home and to bed and slept for about 24 hours I think. I didn’t wind up taking the daily allergy med as this time it didn’t get any worse than a mild itch. He did say the itching that occurred even a month later was due to the medication in my system still. The itch seems to act up when I just wear myself out and I hadn’t been sleeping well at the time.
My migraines haven’t seemed as often or severe, but of course I happen to have one today. I guess I am lucky, I don’t have to work today.
I am glad I don’t have to give up the Remicade at this point. It really seems to be helping me live a full functional life with only a moderate amount of pain for most the day.
Other health news is my primary doctor has put me back on daily Prilosec saying that the depletion of calcium is much less dangerous than esophageal cancer, which is a danger with long term chronic acid reflux.
Well I won’t be able to call this a daily health journal if I don’t start writing in it more. Just by the time I get done with running my errands and taking care of my responsibilities I go to lay down and once I lay down for the evening I don’t move again until morning.
It’s 3 am and I am up with acid reflux. I don’t know how someone with acid reflux as bad is mine forgets they can’t eat pizza, but I ate it. I suppose its better than being up with a migraine or other pain.
Monday I had Steve Ito work on my shoulder again and it hasn’t bothered me since. He also worked on my migraines again and my morning migraine wasn’t there when I woke on Tuesday.
I also saw Dr. Le about the Remicade and Psoriatic Arthritis on Monday. I was hesitant to have the Remicade every 6 weeks instead of 8 but the pain does come rushing back after just a couple of weeks and I want to get the most benefit I can from the Remicade so I am following his advice and getting the infusions every 6 weeks instead of 8. Its a hassle since I can’t drive myself and its so far away. It means someone’s whole day is taken just driving me there and back and waiting for me while I have the infusion. Dr. Le told me about a law called the Family Leave Act, where an employer must give a family member time off to get necessary care. My husband does get family medical leave but its really good to know about this law and I am sure it can help others if I don’t need it. Basically a doctor would just need to fill out forms that any HR department would have. Still I know I am out of service for a couple of days after the Remicade, and that I am asking someone else to take a whole day for me, made me hesitant about agreeing to the more frequent infusion. But it really does seem to be working, and I so much want to live a normal pain free life.
I have read that the Remicade is a chemotherapy, and I know its not as brutal as cancer chemo, but it was still a little shock to see it in writing on some paperwork the office gave me. I guess if it works they can call it whatever they like.
Some wonderful news is a friend is going to be sharing a little art studio/gallery space with me. It’s going to be something that will work around my illness, we will but a heater in, and a sofa with lots of little throw blankets so I can be comfortable when there. It will also have tons of flexibility so I won’t need to go in at all on bad days.
Today was a fairly good day. We worked La Costa Farmer’s Market. No sales which is always rough, especially when we do so much work and drive so far.
I didn’t have a trace of a migraine at all today. I had a moderate amount of achiness. I did have several rather mild episodes of chest/jaw pain. When I say mild I mean it didn’t make me want to cry or scream, but I did long to climb into bed and call a quick end to my day. The chest pain is never truely mild, just tollerable and not so much tollerable.
I also have had acid reflux in the past two days. I am wonder if wheat might be a trigger food for it.
- Anyways, I realized I am a much happier functioning person without a migraine. Once I get the psoriatic arthritis under control I will focus on controlling the migraines, the slipping rib syndrome and the acid reflux. Great news is I found a great chiropractor who will work with me on payments. He feels that if I get my ribs put back every time they go out, eventually they won’t dislocate as easily. He also has some adjustments for acid reflux and says I have some signs of a hernia that could be causing the symptoms. Its possible many of my symptoms may be helped with regular chiropratic visits.
There is so little info out there about slipping rib syndrome. As far as I know I have gone through the main treatment for it out there, Prolotherapy, where dozens of little saline injections are placed into the damaged joint, causing inflamation, which causes the body to focus on healing and rebuilding in this area. This really worked great for me. The problem is it worked to a limited degree. They won’t do the proceedure if you aren’t in pain at the time of the proceedure, and I had to make my appointments a month in advance. That worked wonderfully for me until prolotherapy actually started working. Then I would head out to my appointment two hours before and have no idea if I would be in pain by the time I got there. More than once I was turned away when I got there because I wasn’t in pain at the moment. I would say I am probably about 50% better, maybe being a little less generous than I should be, because I am in pain right now.
I go see a chiropractor (two actually) on a regular basis, but it would be impossible for me to go see one often enough to remain pain free from the dislocated ribs. I would love to have a chiropractic membership, like people have massage memberships or gym memberships, where I could just pay a flat monthly fee and just go as often as needed. I don’t know if such a thing exists but if it did it would probably not be in my price range. My insurance company will cover three visits a year. Ideally I would get three a week. Financially I am limited to one a month, two if I simply can’t stand the pain.
Slipping Rib Syndrome is basically an injury to the connective tissue, caused by trama to the area. The ribs slip out of joint fairly easily, and its common to have three ribs or more dislocated at one time. It hurts to move, stetch, sit still, lay down, eat, breathe. Right now my ribs have been dislocated for about 10 days and it hurts so badly I can’t sleep. For me, it was caused by a misdiagnosed life time chronic cough. It got very severe after having my son and I was treated for asthma for about 5 years while the cough just got worse. Turns out it was acid reflux, probably exasperated by my new diet and a sudden senditary lifestyle. The cough was so extreme I was embarrassed togo out, and it was increased by physical activity so I got even more sendiatry. The pain in my chest from the ribs dislocating was misdiagnoised as fibromyalgia, an easy diagnoises since I had other autoimmune symptoms and had not yet been diagnoised with the psoriatic arthritis.
I have tried glucosamine drinks and plenty of “miracle” drink cures, but I am open to other ideas. Maybe there are no other treatments, but in my quest for total health in my fight against the psoriatic arthritis, I would be remise if I didn’t try to fix all of the issues causing me health problems.
I was able to help my grandmother three days in a row. I have found if I am not in too much pain three cups of coffee spread through the day will give me just enough energy. Its a temporary solution I know. The coffee and caffiene will wreck havok on my acid reflux, cause a chronic cough, and exasperate my slipping rib syndrome.
My ribs were bothering me yesterday but not as severely as the day prior. I woke with a migraine today but I had gone a whole week without one, so I would feel ungrateful to complain. My psoriatic arthritis pain hasn’t been bad at all, so I am hopeful that the Remicade is working. The nurse did say some people see results in as little as six weeks and thats where I am. So far I haven’t noticed any side effects, such as hair loss or infection; only rather extreme fatigue for a few days after the injection.
Took some off brand migraine asprin as excedrine migraine is still off the market. Hopefully it will also take the edge off of the rib pain.