Well I won’t be able to call this a daily health journal if I don’t start writing in it more. Just by the time I get done with running my errands and taking care of my responsibilities I go to lay down and once I lay down for the evening I don’t move again until morning.
It’s 3 am and I am up with acid reflux. I don’t know how someone with acid reflux as bad is mine forgets they can’t eat pizza, but I ate it. I suppose its better than being up with a migraine or other pain.
Monday I had Steve Ito work on my shoulder again and it hasn’t bothered me since. He also worked on my migraines again and my morning migraine wasn’t there when I woke on Tuesday.
I also saw Dr. Le about the Remicade and Psoriatic Arthritis on Monday. I was hesitant to have the Remicade every 6 weeks instead of 8 but the pain does come rushing back after just a couple of weeks and I want to get the most benefit I can from the Remicade so I am following his advice and getting the infusions every 6 weeks instead of 8. Its a hassle since I can’t drive myself and its so far away. It means someone’s whole day is taken just driving me there and back and waiting for me while I have the infusion. Dr. Le told me about a law called the Family Leave Act, where an employer must give a family member time off to get necessary care. My husband does get family medical leave but its really good to know about this law and I am sure it can help others if I don’t need it. Basically a doctor would just need to fill out forms that any HR department would have. Still I know I am out of service for a couple of days after the Remicade, and that I am asking someone else to take a whole day for me, made me hesitant about agreeing to the more frequent infusion. But it really does seem to be working, and I so much want to live a normal pain free life.
I have read that the Remicade is a chemotherapy, and I know its not as brutal as cancer chemo, but it was still a little shock to see it in writing on some paperwork the office gave me. I guess if it works they can call it whatever they like.
Some wonderful news is a friend is going to be sharing a little art studio/gallery space with me. It’s going to be something that will work around my illness, we will but a heater in, and a sofa with lots of little throw blankets so I can be comfortable when there. It will also have tons of flexibility so I won’t need to go in at all on bad days.
Today was a fairly good day. We worked La Costa Farmer’s Market. No sales which is always rough, especially when we do so much work and drive so far.
I didn’t have a trace of a migraine at all today. I had a moderate amount of achiness. I did have several rather mild episodes of chest/jaw pain. When I say mild I mean it didn’t make me want to cry or scream, but I did long to climb into bed and call a quick end to my day. The chest pain is never truely mild, just tollerable and not so much tollerable.
I also have had acid reflux in the past two days. I am wonder if wheat might be a trigger food for it.
- Anyways, I realized I am a much happier functioning person without a migraine. Once I get the psoriatic arthritis under control I will focus on controlling the migraines, the slipping rib syndrome and the acid reflux. Great news is I found a great chiropractor who will work with me on payments. He feels that if I get my ribs put back every time they go out, eventually they won’t dislocate as easily. He also has some adjustments for acid reflux and says I have some signs of a hernia that could be causing the symptoms. Its possible many of my symptoms may be helped with regular chiropratic visits.
There is so little info out there about slipping rib syndrome. As far as I know I have gone through the main treatment for it out there, Prolotherapy, where dozens of little saline injections are placed into the damaged joint, causing inflamation, which causes the body to focus on healing and rebuilding in this area. This really worked great for me. The problem is it worked to a limited degree. They won’t do the proceedure if you aren’t in pain at the time of the proceedure, and I had to make my appointments a month in advance. That worked wonderfully for me until prolotherapy actually started working. Then I would head out to my appointment two hours before and have no idea if I would be in pain by the time I got there. More than once I was turned away when I got there because I wasn’t in pain at the moment. I would say I am probably about 50% better, maybe being a little less generous than I should be, because I am in pain right now.
I go see a chiropractor (two actually) on a regular basis, but it would be impossible for me to go see one often enough to remain pain free from the dislocated ribs. I would love to have a chiropractic membership, like people have massage memberships or gym memberships, where I could just pay a flat monthly fee and just go as often as needed. I don’t know if such a thing exists but if it did it would probably not be in my price range. My insurance company will cover three visits a year. Ideally I would get three a week. Financially I am limited to one a month, two if I simply can’t stand the pain.
Slipping Rib Syndrome is basically an injury to the connective tissue, caused by trama to the area. The ribs slip out of joint fairly easily, and its common to have three ribs or more dislocated at one time. It hurts to move, stetch, sit still, lay down, eat, breathe. Right now my ribs have been dislocated for about 10 days and it hurts so badly I can’t sleep. For me, it was caused by a misdiagnosed life time chronic cough. It got very severe after having my son and I was treated for asthma for about 5 years while the cough just got worse. Turns out it was acid reflux, probably exasperated by my new diet and a sudden senditary lifestyle. The cough was so extreme I was embarrassed togo out, and it was increased by physical activity so I got even more sendiatry. The pain in my chest from the ribs dislocating was misdiagnoised as fibromyalgia, an easy diagnoises since I had other autoimmune symptoms and had not yet been diagnoised with the psoriatic arthritis.
I have tried glucosamine drinks and plenty of “miracle” drink cures, but I am open to other ideas. Maybe there are no other treatments, but in my quest for total health in my fight against the psoriatic arthritis, I would be remise if I didn’t try to fix all of the issues causing me health problems.
Well its been an awesome week health wise. Nearly a week with very little migraine. My muscle and joint aches have been far less severe, and my energy level has been up. I have been helping my grandmother hold an estate sale so I have been having three caffeine drinks a day to be able to make it through the day, but I have been able to. Still tired by mid evening, but its certainly better than by mid afternoon, or even mid morning.
The worst thing has been the dislocated ribs from the slipping rib syndrome. I wish I had a monthly chiropractic membership so I could go as often as needed. I often go a week or two, sometimes longer in rather dibilitation pain, because I simply can’t afford to go to a chiropractor more than a couple of times a month. Still a couple Aleve and I have been able to get through my responisiblites. I did have to cancel three shows this weekend, because I know I just don’t have the energy or health to do the shows and the estate sale. Someday maybe. If not, its ok. I think I could live just fine being in just a moderate amount of pain. The rib pain gets worse at night, when my body is tired and the meds wear off. I also am sure wearing bras make it worse. It’s nearly 10 pm now and my breathing is short and shallow because my chest hurts so much with every breath. They have been out for a week now, so I don’t know how much longer I will be able to stand them out. I already gone to the chiropractor three times this month so I am waiting until we can afford it. Its so hard to spend so much money on it as I know its always such a temporary fix. Still its been a relatively excellent week. Remicade infusion is next Tuesday.
Yesterday I said that I had been on Remicade a month, but I am notoriously horrible with math and its been 6 weeks, with my third infusion scheduled for next Tuesday.
Yesterday I struggled still with exhastion but was able to run errands and finish a painting. After dinner, where I over ate a bit, the ribs that had slipped over the weekend started really giving me problems. Its hard to breath, but slipping rib syndrome is something that is unlikely to ever improve and I can’t afford to go to the chiropractor ever time a rib or two gets dislocated. If I had unlimited funds I would go to the chiropractor a few times week, but instead try to limit it to once or twice a month, which tends to be enough to keep me out of the emergency room. Two alleve tempered the pain enough so I could sleep, and two more this morning so I can get through the day. I am helping my grandmother get ready for a big estate sale, so I will just need to communicate that I can not lift things.
Exercise on hold until my ribs are a bit better.
Another day without a migraine, sounds like a great day to me! Also arthritis pain a minimum!
Filed under Chronic Pain, communication, Daily Journal, exercising with illness, exhuastion, Health, Infusions, Migraines, Pain, Psoriatic Arthritis, Remicade, slipping rib syndrome
Yesterday I woke miserable. Bad migraine, ribs dislocated. But I was able to get some grocery shopping done before my appointment. Paid a visit to Chiropractor Ito and he worked on getting my ribs back in and also did several adjustments for my migraine. My migraine actually got worse about an hour after but by evening it had dissipated.
I spent a good two hours last night with very little pain, and was able to run a quick errand and make dinner while feeling “blue” on my pain scale. By 8 pm I had plenty of muscle fatigue and typical aches and pains but wasn’t feeling too bad.
I woke this morning feeling like there was a fire within me. And I don’t mean in a figurative way. It felt like my insides were on fire. I turned on the air and can’t seem to cool off. Maybe its the Remicade? Maybe its the body cleanse I started taking last night? Maybe I hit menopause over night?
My migraine seems to be on the way out, Yay!!! The pain is slight and fades to nothing, only to come shooting back for short periods, and then fades again. Its amazing how much color and how wide my field of vision is without a migraine. When I don’t have a migraine I think I must see the world like a vampire. Or like a human….Its so nice to feel human again.
Other than that, I have my basic “greenish” aches and pains, with a bit more “yellow” around the ribcage, which I expect to be angry after days of dislocated ribs and all the manipulations yesterday.
The nurse Tuesday warned me of days like this…I am not to go try to save the world, not yet at least. So today I will run one errand, take care of PTA paperwork, and work on some frames for some odd size works of art, AND take it easy.
I think I must be going on five days for this migraine, but it could be more. It hasn’t hit me as hard as they often can though so its tolerable. The pain from the arthritis is tolerable as well. My legs are a bit achy, and don’t quite feel like they can hold my weight, but I can get around fine.
What is really getting to me today is my ribs. My slipping rib syndrome has gotten the best of me. I got a mammogram last week and I could actually feel some dislocate during the exam. They weren’t too bad a couple of hours later and we were tight on money so I figured they would be fine until the next time I happened to make it into a chiropractor. Then I woke up Saturday hardly able to breath. Every movement caused shooting pains through my torso, and when I was perfectly still I could feel deep deep aches. I can feel with my hands several ribs out.
I have an appointment at 11:30 with one of my chiropractors. I go to two, one on each end of town. Both are great and I feel secure and safe with either. Dr. Cody Massek works out of Temecula and I love that he can get me in and out in a few moments and I am able to go straight to work after seeing him. I can usually just call on my way in and they can get me in. Dr. Cody also recommended the Prolotherapist I went to years ago that helped me so much. Everyone in his office is so fit and there is so much there about diet that I actually feel a little embarrassed to be there. I tried his diet system for a few months but was mentally miserable and just couldn’t stick with it. Dr. Ito puts me on a heated roller table which sometimes really hurts and I have to focus on laying there for what seems like hours, but is probably more like 30 minutes. I am in his office about an hour. His adjustments feel so gentle but I leave there able to breathe and with a sense of well being. I know both these Dr.s would probably I rather not take any medications, but they are understanding and supportive of the decisions I have made with my specialist.
Yesterday was day 2 of my Remicade Infusions. The infusions aren’t so bad, and would be better if I wasn’t so queazy about blood and body goo. I do have to take antihistamines both during and after the infusion. The same body odor that struck me after my first infusion and lasted a week has returned less than 24 hours after the second. I asked the nurse about it and she says she has never heard anyone complain about it before.