Tag Archives: health

New California Law just might Kill me.

Starting January 1st California implemented a new law that would require food workers of all sorts to wear gloves during prep.

This will have unintended problems with some food prep, such as making a lemon twist, or preparing sushi, both rather impossible with gloved hands, but also waste time and money as the gloves need to be changed every time a new food is being handled. There is a fear that to save that time and money that gloves will be changed less often, and a dirty glove is much worse than a clean hand.

For me though the issue is much more personal and much more important. I have a fairly severe latex allergy and latex gloves being used to prepare my food can be deadly for myself or others with a latex allergy. Even gloves being used in the same kitchen, even if not used to prepare my food can be dangerous. Latex gloves release very small particles in the air when snapped, or put on or removed that not only get into the food being prepared but also become airborne and can land on any food in the area; which is what happened to me today. I ate a salad with completely recognizable ingredients and also had checked prior as to latex use in the restaurant and was told they don’t use it. Well it turns out they do in the preparation of some foods and some clean up. Latex gloves didn’t touch what I ate, but I had a reaction anyways. First my mouth started hurting, then my eyes started itching and within 5 minutes my whole body was on fire with a horrible itch and I was having trouble talking and breathing. I got dizzy and felt faint and confused. I probably should have called 911 but I didn’t realize at the time it was early symptoms of anaphylaxis. Instead I took two benydryl and cancelled my afternoon class, and was careful not be to alone. Even after the double dose of antihistamines 5 hours later I am still itchy.

Latex gloves are illegal in three states in food establishments but California added a glove law and forgot to make latex gloves illegal.
Latex gloves are very tactile and fit tightly so may often be preferred by food handlers than the plastic ones that fit loosely and can fall off easily. Synthetic alternatives to latex gloves can also cost more.

I first thought I might have to quite eating out to be safe, but what is protecting the food at my grocery store from containing latex particles. Anything food by hand in california now may have been touched by latex gloves, that includes bags of greens, ready made sandwiches, any raw meats, sliced cheese, breads.

For now I will continue asking if restaurants use latex gloves in their kitchen, but I will also take a daily antihistamine and also never again leave the house without my dpi-pen. Restaurant owners, if you use latex gloves you might want to put it on your menu or even in your window, the last thing you want is to follow this new law and wind up killing someone.

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Health update 4/18

Looks like I am safely out of the flare up and just in time for a busy week.   I have been waking up stiff and achy but no serious pain. I have been relatively active and busy not getting home until about 7 most days I think and I have still been able to make a quick meal before relaxing for the night. I have been regularly checking little things off my todo list which is always so satisfying wheit there are days I am too sick to do a thing. I feel I could manage a nice nature walk if I can only find the time. 

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It’s not easy being green…

The title of this is a quote from Kermit the frog…and I totally disagree.  I LOVE being green.  Blue feels like a pipe dream, but there are days where green overrides all else.  After a week of having high pain levels, I am so pleased to report a near perfect day yesterday.  (if you don’t know what I mean by being green, its that I rate my pain from blue to purple, where blue is no pain and purple is just kill me now pain.  The last week I was hanging around orange and red all week).

Yesterday when I woke I didn’t even limp when I woke.  There was no pain from lifting what was a heavy toothbrush the day before.  I had planned a short trip to nature that morning, just feet in the ocean, because I am a firm believer that nature heals and I had been away from nature far too long.  We only had a few hours before work to drive to the ocean, and then swing by Leucadia’s farmers markets for some of our favorite healthy treats and to see a couple of friends we were missing.  On the way there I saw a bridge surrounded overgrowth of trees and I just had to stop.  I have a love for cement and architecture and to see it just standing in the middle of an elven forest was amazing.  We walked out on the bridge and watched the swallows and other birds.  I felt well enough that if we had planned the time I would have gone on a little hike.  I made it full circle around the market without needed an arm to lean on and was still feeling green by the time I got to work.  During the day I had a few spikes to yellow, but I just sat by the heater or curled up on the sofa when that happened and they passed without having to take any medicine.  We stayed open late to work on some organizing and by the time I got home at about 7 I was actually able to cook up the exotic mushrooms we found at the farmers market.  I woke today stiff and shuffling like an old lady, but not with a lot of pain, and now just 30 minutes later I am back to green.  Of course now I have all these big plans for what I can do this week, and the first will be to see my dear grandma because thats the one thing I wouldn’t want to miss if the flare up comes rushing back.  It’s so easy being green.

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Remicade dosing

I had a doctors appointment Monday and the doctor recommended that we move the Remicade to every 6 weeks instead of every 8 weeks.  Its a hassle because not only do I have to sit there for hours, but its hours away.  Plus I fall asleep for about 24 hours after, and am rather out of it in a druggy haze for a couple of days.  The worst part is since the premeds knock me out so hard there is no way I can drive myself.  So I need to ask someone else to spend an entire day driving me around, and waiting for hours at the local Starbucks.

But if I am going to go through the hassle and side effects of this medication, I certainly want it to work.  So I agreed with minimum complaining.  I did feel so good after the last Remicade infusion, and the more often I have it, the more likely I am to have days like that.

I have pretty good insurance, but my doctor says the reason I have to drive all the way to Redlands is because no place closer to me will take Regal Health Care.  His Corona office IS a cancer center and does chemotherapy off all sorts but Regal doesn’t pay them enough for them to accept it.  I guess I am lucky there is someplace I can get the medication, and with a reasonable co-pay.  If I had no insurance I can’t imagine the pain I would be in daily.

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Filed under Daily Journal, exercising with illness, Pain, Psoriatic Arthritis, Remicade

Daily Health Journal- Nov. 1, 2012

Yesterday was a big day for me.  I stayed home resting until about one then ran a couple of errand before class.  By the time my kids arrived for class I was energized.  I am so fortunate to have a job that I can plan my energy around and that I get so excited about that my body always seems to rally itself without fail.  I managed wonderfully all through class and didn’t even feel a bit of pain or tiredness until I was cleaning up.  By the time I got home I was exhausted and limping, which often happens, but feeling satisfied at another few hours spent changing the world in tiny ways.  Normally I would have limped up to bed and dinner would have magically appeared but that was not an option last night.  Last night was Halloeen.  On Halloween we have a family tradition of hosting a party for friends, neighbors and family in our driveway.

I pulled up and was delighted to find my husband and son had already decorated, got out the bbq, and tables, and had the whole thing ready to go.  My husband had even set up a candy passing out area for me, so I could feel like I was helping and not do too much.   It was  so great to see old friends that I hadn’t seen in way too long drop in.  My grandmother and Dad and Janet had adorable costumes, and my son’s band played to a crowd of teenagers and mothers.  I got to see my favorite little babies, and held them inspite of the pain my body was in.  I often felt like crying my body hurt so badly, but I experience pain all the time, and if I went and laid down the pain would continue, so I tried not to do too much, but enjoy the gift of friendship and love that surrounded me.  Too often I stay home because of pain, thinking if I drop in for a just a little, and am subdued because of pain, that I will just ruin the party.  Last night taught me that pain or not, my loved ones are happy to see me, and even those who have known me a long time, are perfectly fine that I am not the life the party.

For a while now I have not been able to hike and workout and my body, which was on the chubby side to begin with is certainly showing it.  I miss my outings with nature.  I miss my clothes fitting.  I miss not being able to do as much volunteer as I used to do.

Yet right now I am excited about the things I can do and the oppurtunity I have.  I have  a job that only requires short bursts of energy that I can plan for in advance, that in some way or the other touches my heart each day I am there.  I have family and friends that love and support me, no matter if I am healthy or not.  I have a rare golden oppurtunity right now of opening an art studio/gallery with my partner in an artsy town, that we will be making as comfortable as possible with my illness in mind, so that being in the studio won’t be any harder on my body than being at home.  Comeplete with a sofa and blankets in back, so if I get really bad I just need to close the doors and turn off the lights and get some rest.

Right now my body feels like it has been hit by a truck.  It hurts no matter how I move it or not move it.  But my heart and head is filled with love, satisfaction and the glow of oppurtunity, knowing that this life is worth living, no matter what my limitations and pain intensity.

 

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Filed under Chronic Pain, Daily Journal, exhuastion, Health, Psoriatic Arthritis

Daily Health Journal- 10/17

I continue to recover from the surgery but today I was more achy and tired than usually am.  I think I am not getting enough sleep but I have been stressed and also waking in pain so that isn’t helping.   We have had a little life change here at my house, I took in a sweet girl that I met at the hospital, and she is struggling with her own health issues.  I am now worrying about her health as well as mine, but we are only on this earth a short while and I feel we must do as much good as we can for as long as we are able.

I woke today feeling like every muscle in my body hurt, and my body hurt with the slightest touch, even laying or sitting down the pressure of what ever I was against was painful, it seems to be all just psoriatic arthritis.  I have had low energy all day.  Still only the smallest trace of a migraine.  I was able to work a little bit on planning for a class when I get back to work, but I am afraid I wasted half the day staring at facebook screen and watching bits of the debate.

My son and now husband are both sick so I need to steer clear of both of them.  I will cuddle up in a giant bean bag and sleep with the cat to avoid husband germs.  That doesn’t sound so bad.  The cat snores very quietly.

Tomorrow I go and get the stamples out…I will be so glad for that.

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Is this what normal feels like? Daily Journal 10/3

I woke this morning pain free blue.  But it was more than that, my energy level is good, no fatigue.  I didn’t feel like a sick person having a good day, I felt healthy.  I feel healthy.  I got through 10 minutes of Miranda Esmonde-Whites Classic Stretch, which is the most I have done so far.  The Warm Springs PTA is hosting a parent walk at the school that I hope to go to.  I feel like going now but worried the exercising plus the walking will wear my out and I don’t want to risk this moment of health.

I was uncomfortable during the Remicade Infusion yesterday.   I was achy and there was a deep pain shooting through my whole arm the whole time, it felt like a deep cool ache, but after about 30 minutes they added the allergy meds and I fell asleep pretty much immediately.  I slept during the infusion and for an hour or two after.  My husband who had to drive me, stopped on the way home and got my a chocolate covered strawberry.  It wasn’t the best I have had but it sure brightened my mood and made me feel a bit better.  I was able to get out of bed and help make dinner last night, and we had a family dinner around the table.  I didn’t experience the estreme fatigue later into the night, nor do I feel it this morning.  I do have my own lovely Remicade stink. My doctor confirmed it could be a side effect, which it has to be, it has never happened before remicade and it always starts the same night as the infusions.  So its back to several showers a day.  Even if I have a couple great days like this it will be worth being a bit unpleasant.  Oh, and NO migraine.

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Filed under Daily Journal, exercising with illness, exhuastion, Infusions, Migraines, Psoriatic Arthritis, Remicade